NICE- The National
Institute for Curbing Expenditure- labour's road block to slow new NHS
health funding
Drugs
denied to sick - against the rules of NICE NHS watchdog
Thu, Oct 2, 2008- Patients in many parts of Britain are being
denied effective and sometimes life-saving treatments because of funding
shortages in the National Health Service by NICE.
NHS's
refusal to fund cancer treatment costs mother £21,000
Mon, Sep 15, 2008- For Barbara Moss, the photographs of this
summer's camping trip to France will be particularly special.Two years
ago, she was diagnosed with bowel cancer and given less than five months
to live.
Cost
cannot be the only criterion for the NHS
Wed, Sep 10, 2008- Health Direct posts a stinging
letter from senior health professional lambasting NICE and labour's financial
accounting policies which favour tattoo removals over cancer sufferers.
NICE
blight- at last a life saving choice for patients
Thu, Sep 04, 2008- For the past nine years the National Institute
for Curbing Expenditure (NICE) has been called upon to make judgments
on matters of life and death.
NHS
risks losing cancer drugs after NICE blights patients
Fri, Aug 22, 2008- One of the world’s leading drug companies
is threatening to withdraw some of its new cancer treatments from the
process by which they are approved for use in the National Health Service.
NHS
drugs body NICE 'bullied, ignored and patronised' patients
Thu, Aug 13, 2008- The NHS's drug-rationing body NICE has been
accused of bullying, ignoring and patronising patients in consultation
over the availability of life-altering medication.
Cancer
patients condemned to early deaths by NICE's cruelty
Wed, Aug 12, 2008- Thousands of cancer patients have been condemned
to an early death by labour's National Institute for Curbing Expenditure
(NICE) as they blocked paying for cancer drugs which are widely available
in Europe.
NICE
blights 40,000 people with Rheumatoid Arthritis access to life changing
drugs
Tue, Aug 5, 2008- The National Rheumatoid Arthritis Society (NRAS)
has reacted angrily to the National Institute for Curbing Expenditure
(NICE)'s decision will deny approximately 60,000 people with Rheumatoid
Arthritis (RA) access to a range of Anti-TNF drugs and could blight them
facing high levels of pain, the possibility of more surgery and long term
disability.
Ban
on NHS top up is cruel rationing, says BMA
Wed, Jul 30, 2008- Doctors believe patients should be allowed
to pay for drugs that are not available on the NHS as they called for
an independent inquiry into the controversial problem.
NICE
banned cancer drugs better than NHS ones
Wed, Jul 23, 2008- Privately bought cancer drugs are proving
to be up to five times as effective as NHS treatments, Health Direct reports
on the suffering the co-payments ban is inflicting on patients.
Survey
points to postcode lottery in health spending
Tue, Jul 14, 2008- NHS postcode lottery grows as the amount spent
per head on health and social care is 17 per cent less in England than
in Scotland, according to official figures.
Doctors
for Reform fight NHS order to halt cancer care
Tue, Jul 8, 2008- Doctors for Reform- a group representing nearly
1,000 doctors is preparing to mount a legal action against the health
service to stop care being withdrawn from patients who want to pay for
their own cancer medicines.
NHS
scandal of dying cancer victim who was forced to pay for her own drugs
Fri, Jun 27, 2008- A woman who died of cancer was denied free
National Health Service treatment in her final months because she had
paid privately for a drug to try to prolong her life.
Drug
companies win Alzheimer's Aricept appeal against NICE watchdog
Fri, May 16, 2008- The pharmaceutical industry won a stunning
victory in the Court of Appeal over the labour government’s "value
for money" watchdog NICE.
Lung
cancer drug Tarceva ruled too expensive for English patients by NICE in
postcode lottery ruling.
Wed, May 7, 2008- Thousands of lung cancer patients in England
will be denied a drug Tarceva which could prolong their life after it
was ruled too expensive by the NHS watchdog NICE.
Clot
drug Pradaxa could save 25,000 lives a year
Thu, Apr 24, 2008- Wider use of a new blood thinning drug to
stop clots could save thousands of lives a year, says a charity.
Doctors
for Reform fight NHS order to halt cancer care
Mon, Apr 14, 2008- A group representing nearly 1,000 doctors
is preparing to mount a legal action against the health service to stop
care being withdrawn from patients who want to pay for their own cancer
medicines.
MPs
Call for rethink over NICE drug assessments
Thu Jan 10 2008- The cost effectiveness of new medicines should
be judged by National Institute for Curbing Expenditure (NICE) in terms
of the wider social benefits that their availability on the National Health
Service would bring, according to MPs.
NHS
U-turn on prostate cancer treatment by NICE
Mon 17 Dec 2007- A life saving treatment will be denied to tens
of thousands of victims of Britain's most common male cancer after a U-turn
by the NHS rationing body NICE.
NICE
U-turn on eye drug will save the sight of thousands
Thu 13 Dec 2007- Thousands of people will be saved from going
blind following a U-turn by the government's drug advisory body NICE-
which will allow them to get an expensive new treatment on the NHS.
50,000
people denied insulin pumps in the UK by NICE's postcode lottery
Fri 7 Dec 2007- The charity Diabetes UK is calling for more access
to insulin pumps for people with diabetes as new research shows they are
more effective in improving blood glucose control and reducing hypoglycaemic
episodes than traditional insulin injections.
Strokes-
postcode lottery for stroke scans costs lives
Wed 5 Dec 2007- Thousands of stroke victims die unnecessarily
every year because access to the best care is subject to a "postcode
lottery", campaigners have said.
Experts
criticise NICE drugs advisory body
Tue 30 Oct 2007- Labour's drugs advisory body NICE is issuing
poor quality guidance because it excludes experts from the drafting process,
doctors told MPs.
NICE's
Alzheimer's court win condems thousands to more suffering
Fri 10 Aug 07- NICE has thwarted campaigners
who have failed in their High Court bid to force the NHS to fund Alzheimer's
drugs in people with early stage disease. However, the National
Institute for Curbing Expenditure (NICE) has been told to rewrite
guidance on how the disease is assessed.
NICE's
Alzheimers drug ban is abhorrent the High Court is told
Tue 26 Jun 07- The health watchdog NICE's decision
to deprive 100,000 mild Alzheimer's victims of a £2.50 a day drug
that can delay the onset of the disease was condemned as "abhorrent
and disgusting" in the High Court yesterday.
Cruel
watchdog NICE condems 20,000 to blindness to save money
Thu 14 Jun 07- Twenty thousand people will be condemned to blindness
each year following a "cruel" and "appalling" decision
by the health watchdog NICE, campaigners said today.
The National Institute for Health and Clinical Excellence (aka National
Institute for Curbing Expenditure) has come under intense pressure to
approve the drugs Lucentis (ranibizumab) and Macugen (pegaptanib) for
use on the NHS.
Drugmaker's
proposal to NHS's NICE- we'll pay if cancer treatment fails
Mon 4 June 07- A British based drugmaker has made a groundbreaking
offer to the National Health Service to cover the cost of a £25,000
cancer drug if a patient using it failed to show adequate progress. The
NHS would only pay for the new drug, Velcade, when patients responded
well to it, under a joint proposal from Janssen-Cilag the drugmaker.
Move
to boost openness on NHS drugs by NICE
Tue 22 May 07- The labour government's medicines advisory body
will from this autumn open to public scrutiny the work of the committees
that decide whether the health service should pay for new drugs. In a
ground breaking move to boost transparency, Sir Michael Rawlins, the chairman
of the National Institute of Health and Clinical Excellence (Nice), told
MPs that the action marked the latest in its efforts to boost transparency
and that it had been a matter of "regret" that its committees
had previously met in private.
Fears
over NHS cancer drug costs blocked by NICE- National Institute for Curbing
Expenditure
Tue 15 May 07- Cancer doctors have told the BBC they fear the
NHS will not be able to afford the new generation of cancer drugs. Specialists
are already arguing that patients may have to pay for more drugs themselves,
with the issue becoming pressing as new drugs are developed. But some
patients offering to pay for a cancer drug are being told they would have
to meet all their care costs.
Warning
over cuts to subsidies on drugs advice
Wed 21 Mar 07- Looming cuts to funding for independent prescription
advice for doctors could undermine the best use of medicines in the UK,
a senior medical figure warned yesterday. Sir Charles George, director
of the British Medical Association's BMJ Group, which publishes a range
of guides for doctors, said: "We're worried that a number of sources
of information about good prescribing have disappeared."
English
denied cancer drug given to Scots by NICE
Wed 14 Mar 07- Lung cancer victims in England and Wales are to
be denied a life-saving drug available on the National Health Service
in Scotland — at least the eighth such decision in the past two
years. The National Institute for Health and Clinical Excellence (Nice)
last week rejected Tarceva, which is used to treat lung cancer, on the
grounds it is not an effective use of NHS resources.
NICE
faces inquiry by Commons MPs group
Wed 7 Feb 07- The Commons health committee has announced terms
of reference for a broad inquiry into the work of NICE, the National
Institute for Health and Clinical Excellence. The committee said
it wanted to examine "why Nice's decisions are increasingly being
challenged" after recent controversial recommendations that the NHS
should not use certain costly cancer drugs and should restrict the use
of drugs to treat Alzheimer's to those with moderate forms of the disease.
Drugs
watchdog faces legal review- NICE's approach is irrational and flawed
Fri 17 Nov 06- A decision by the Labour government's drugs watchdog
to restrict the use by the NHS of Alzheimer's medication is to be challenged
in court. Two drug companies plan to apply for a judicial review of the
way the National Institute for Health and Clinical Excellence reached
its conclusion. NICE ruled NHS patients with newly diagnosed, mild Alzheimer's
disease should not be prescribed the drugs.
National
Institute for Curbing Expenditure (NICE) blights thousands of Alzheimer
sufferers
Wed 11 Oct 06- NICE has been renamed by NHS doctors as the National
Institute for Curbing Expenditure after it's latest edict to ban the funding
of Alzheimers drugs costing only £2.50 a day- which will effect
hunderds of thousands of sufferers. "This blatant cost-cutting will
rob people of priceless time" said Neil Hunt of the Alzheimer's Society.
NICE's
delay could blind thousands with AMD campaigners warn
Fri 6 Oct 06- A drug for treating the disease which is the biggest
cause of sight loss in the UK could also help people regain some vision,
research suggests. Injections of the drug Lucentis can improve sight in
people with a particular form of retina degeneration. Although the drug
Lucentis has been given a US licence, NICE's hold up will mean that thousands
of UK sufferers of AMD will be denied access for their failing sight.
"Cruel"
NICE bans bowel cancer drugs Avastin and Erbitux
Tue 22 Aug 06- Charities have criticised a proposal to block
the routine NHS use of two drugs for advanced bowel cancer. The National
Institute for Health and Clinical Excellence (Nice) said there was insufficient
evidence to recommend Avastin and Erbitux. But charities say both drugs
are the best option for seriously ill patients whose cancer has spread.
NHS
drug watchdog backs Herceptin
Mon
12 Jun- The NHS's drugs watchdog says people with early stage breast
cancer should be able to get the drug Herceptin. The draft guidance from
the National Institute for Health and Clinical Excellence (NICE) comes
two weeks after the drug received its European licence. Cancer experts
say hundreds of lives will be saved by making Herceptin available across
the UK.
NHS
refuses to fund new prostate cancer Brachytherapy for men
Tue
6 Jun- Hundreds of men are being denied an alternative to radical
surgery for prostate cancer because the National Health Service is refusing
to pay for it. Hard-up primary care trusts across England have stopped
funding Brachytherapy, a new form of radiotherapy, although it has been
approved by the National Institute for Health and Clinical Excellence
(Nice).
10,000
in 'breast cancer backlog'
Wed
24 May- About 10,000 women are now caught in a backlog for breast
screening in the Northern Health Board area, the BBC has learned. The
board said it was currently running 13 months behind schedule. It comes
after a consultant radiologist who worked at three NI hospitals was suspended
over concerns about his "clinical judgements".
NHS
told to fund treatment abroad in landmark court ruling
Tues 16
May- UK patients who are forced to wait longer than they should for
NHS treatment are entitled to reclaim the cost of being treated in Europe,
a court has ruled. The European Court of Justice said the NHS must refund
costs if patients waited longer than clinicians advised, even if waiting
time targets were met. The case, which centres on the definition of "undue
delay", could have a significant impact on the whole NHS.
Landmark
High Court ruling in Herceptin patient's favour against "irrational
and unlawful" NICE guidelines
Wed 12 Apr-
A breast cancer patient should have the drug Herceptin, according to a
landmark ruling from the Court of Appeal this morning. Ann Marie Rogers
of Swindon, Wilts, was appealing against an earlier High Court decision
upholding Swindon Primary Care Trust's refusal to fund Herceptin. The
Appeal Court ruling does not force local NHS bodies to fund the drug,
but it said it was irrational to treat one patient but not another. Ms
Rogers, 53, had said she faced a "death sentence" without Herceptin.
Tue
4 Apr- Thousands of cancer sufferers are being denied life-saving
drugs because of delays and bureaucracy in making them available on the
NHS. The hold-ups are a matter of life and death for desperate people
who have been diagnosed with cancer of the breast, colon or lung, or with
a brain tumour.
Mon
20 Feb- A mother of three fighting for the NHS to supply her with
the Herceptin cancer drug that could save her life lost her case in the
High Court. The judge ruled that Swindon Primary Care Trust (PCT) had
acted legally in deciding that Ann Marie Rogers, 54, was not "an
exceptional case".
Tue
14 Feb- Cancer care could be transformed within 20 years from a fatal
disease to a manageable condition like diabetes, experts will announce
this week. But the cost of ensuring that cancer is no longer a death sentence
could not be funded under the current National Health Service, they will
argue.
Tue 13 Dec-
Women with early stage breast cancer see Herceptin as a potential life-saver,
but health economies must cater for the needs of the whole population.
And political interference makes a difficult situation even worse. It
started with Somerset nurse Barbara Clark preparing to sell her house
to fund a course of drugs that could be crucial in her fight against breast
cancer.
Nice
blight bypass for drugs runs out of money
Mon 7 Nov-
A fast- track scheme to provide drugs on NHS runs into a funding row.
Health ministers have approved a fast-track system to decide which new
drugs the National Health Service should provide, but have found themselves
locked in a row over funding.
Lancet
calls Labour's NHS plans irresponsible and potentially dangerous
Wed 12 Oct-
The NHS: a national health sham- Britain's National Health Service (NHS)
as the public used to know it— a centrally managed, publicly owned,
government- financed health system— is no more. The end of the NHS
was confirmed last week by health secretary Patricia Hewitt, who pledged
to continue with plans to introduce market-based contestability (the Government's
byword for competition) into primary care, despite strong opposition from
many health workers.
Mon 3 Oct-
British delays keep new drugs from cancer patients- cancer patients in
Britain are less likely to be treated with the latest medicines than those
in almost any other European country, except for former communist states
such as the Czech Republic, Hungary and Poland. The lack of availability
affects treatments including Herceptin, the breast cancer “wonder
drug”.
Tues 20 Sept-
Cancer charity CancerBACUP has issued the following statement in response
to today’s Audit Commission report Managing the financial implications
of NICE guidance “CancerBACUP highlighted the problem of postcode
prescribing of cancer treatments in October 2003” says CancerBACUP
Chief Executive Joanne Rule. “It is appalling that almost two years
later the Audit Commission has found that only 25% of NHS bodies are implementing
NICE guidance and that a lack of financial management at PCT level is
largely to blame. "
Mon 12 Sept-
Cuts keep patients waiting for drugs- Tens of thousands of patients face
potentially fatal delays in receiving the best drugs for their diseases
because of Government cuts, it was admitted. Almost a quarter of the treatment
appraisals being carried out by the National Institute for Clinical Excellence
(Nice) have been delayed because it has had to scrap one of its three
committees carrying out assessments.
Sun 21 Aug-
Rationing of cancer drugs by the NHS will provoke fresh controversy this
week with a revelation that a treatment which could help thousands of
patients will not be available across the country for at least two years.
Wed 11 May-
Patients should be refused treatment because of their age in some cases,
government advisers have proposed. Where age can affect the benefits or
risks of treatment, discrimination is appropriate, the National Institute
for Health and Clinical Excellence said.
Tue 1 Feb-
Thousands of couples desperate to become parents will not receive free
fertility treatment, despite a government pledge to offer at minimum of
one cycle on the National Health Service. An investigation can reveal
that fertility services in England and Wales are in crisis, with some
NHS trusts refusing to supply any treatment for certain couples.
Please note-
we give respect where respect is due.
Whilst we applaud and respect the NHS staff that work and deliver incredible
results to patients under pressure from ridiculous amounts of red tape
in adverse conditions, we deplore the armies of paper pushers that the
Labour government is creating in their desperate attempt to justify
the huge amounts of tax that they are wasting on the NHS.
We are a "not for profit" organisation who believes that in
the new era of openness under the Freedom of Information Act that it
is in the interests of all parties to be open and honest about the value
for money that the new Labour reforms are achieving for all of the billions
of pounds that they are costing.
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